Central American Consortium for
Pediatric Burns
October 18-21, 2006
Contents
Review of Days 1 and
2……………………………….
3
Vision, Mission and Values……………..…………….
5
Goals and Objectives…………………………………
8
Burn Prevention……………………………………… 9
Training/Education…………………………………..
11
Research Evaluation/Outcomes……………………… 14
Communication/Leadership………………………….
16
Funding………………………………………………. 19
Provisional Task Force….…………………………….
20
2
Review of Day 1
Argument for Partnership (Asociación de Hermandad)
Success stories from Nicaragua and Dominican Republic
Group Exercise #1: Developing a Framework for Success





Vision
Mission
Values
Goals/Objectives
Challenges
Group Exercise #2: Definition and methods:




Burn Prevention
Burn Training/Education
Partnership Communication and Leadership
Ongoing Research & Analysis (Evaluation of Outcomes)
3
Review of Day 2
Recap of Day 1 – Review of Asociación’s Mission, Vision and Values
Presentation – Methods to Evaluate Burn Care Programs
Group Exercise #3: Measuring outcomes and sharing results
 Burn Prevention
 Burn Training/Education
 Partnership Communication and Leadership
 Ongoing Research & Analysis (Evaluation of Outcomes)
 Funding
Establishing Goals and Objectives
Developing Next Steps
4
Vision
An image or word picture that describes a desired future:
An international “asociación de hermandad”
that significantly improves the quality and
availability of burn treatment, education and
prevention for all children, specifically in
Central America and the Caribbean
5
Mission
A brief statement that describes what the partnership
does or why the partnership exists (purpose):
We strive to continuously improve the quality
of education and treatment for pediatric burn
victims as well as promote awareness of burn
prevention throughout Central America and
the Caribbean.
6
Values
1.
2.
We have a passion to undertake the challenge of burn care and prevention
We are committed to effective leadership, ongoing initiative and continuous
improvement of burn care and prevention
3. We strive to maintain unity and sensitivity for all members of the
association; we value integration, cooperation and collaboration in pursuit of
common goals
4. We pursue ongoing education and continuous improvement of our technical
skills
5. We are committed to ongoing research and evaluation of outcomes
7. We maintain a high standard of ethics
8. We value integrity, equitable treatment and respect for burn victims and their
families
9. We value the holistic and collaborative approach to patients (body, mind and
spirit)
10. We have a high value for cultural diversity
7
Goals/Objectives
1.
Establish association leadership that is committed to the vision, mission and
values and will work with PFP to accomplish the stated goals/objectives
a.
2.
3.
Increase collaboration between all members
Promote awareness of the association
a.
b.
4.
Develop active campaigns to educate and prevent
Develop successful fundraising strategies and activities
Define standards/protocols for burn care
a.
5.
6.
Establish and maintain focus on vision, mission and values in a manner that
impacts our daily activities
Research and evaluation
Improve communication between all members of the association
Develop programs that support and build incentives for burn nurses
8
Proposed Strategy - Burn Prevention
Through a sustainable prevention program based on hard facts, we
are looking for a cultural change in attitude that leads to a change in
conduct, consciousness and awareness, education and practices.
1. Identify and research causes/risk factors by age group related to accidental
and intentional burns
2. Prevention campaigns are costly, it will be important to establish the
following:
a. Continuity until we reach our goals
b. Legal measures or strong regulations
c. Knowledge of real statistics
d. National and international alliances
9
Proposed Strategy - Burn Prevention
3.
Measuring the effectiveness of burn campaigns is based on the number of
diminished severe burn victims
a.
Requires measuring the number of severe burn victims before and after the
campaigns
b. It could take five years before measurable improvement is evident
4.
Data and information is shared on an annual basis and would include:
a. Database that tracks burns that have taken place on a daily basis
b. Information from all countries in the association
c. Tracking of new laws that the government has implemented regarding burn
care and their effectiveness
10
Proposed Strategy - Training/Education
Training/education for Doctors
1. Provide better training in their country
2. Establish resident rotations (possible post-grad fellowships)
3. Distinguish between general practitioners versus specialists
Training/education for Nurses
1. Establish basic training with opportunity to advance to more expert training
(teaching programs)
2. Make it easier for nurses to visit other units (in other countries) for
knowledge and training
3. Nursing leadership is needed
11
Proposed Strategy - Training/Education
Training/education for burn rehabilitation
Training/education for nutrition
Training/education for social work training and education
Evaluation of Training/Education Effectiveness
1.
Measurements on training education and effectiveness to include:
a.
b.
c.
Retained knowledge through verbal feedback measurement, interactive
scenarios and testing; determine what training is being retained and what is not
being learned)
Performance measurement on subjects/techniques taught
Measurement of medical incidences (e.g., infections, surgical techniques)
12
Proposed Strategy - Training/Education
Information, shared through email and telemedicine, includes:
•
•
•
•
•
•
Work experience and medical techniques
Facts and knowledge
Opportunities for internships and other methods of training/education
(specific types of training for specific countries)
Protocols and standards of care across burn units
Legal advances in all participating countries
Stories and words of humor, morale-building, empathy/sympathy
13
Proposed Strategy - Research Evaluation/Outcomes
Includes: needs assessment, collection of data and standards of
acceptance
1.
2.
3.
4.
5.
Establish a research culture
Develop a common system for collecting data
Create a web-based data system/database
Offer awards of excellence as incentive
Develop standardized system of evaluation (by unit?)
End Result/Benefits:
1. By reviewing data, we can determine if we were able to meet our objectives
in all burn care areas (medical care, prevention, rehabilitation)
2. Better positioned to raise funds and apply for grants
3. A method of evaluation allows us to improve and to establish priorities on
where to focus resources
14
Proposed Strategy - Research Evaluation/Outcomes
Outcome indicators to be measured are those valuable to patients
and those that indicate the consortium’s progress in meeting its
objectives.
Information sharing occurs through a HIPPA compliant website to
maintain patient confidentiality and requires:
1.
2.
3.
4.
5.
6.
Password protection
Agreed format for data/information collection (e.g., Access, Excel)
On-line course regarding the protection of patient confidentiality
Dedication to maintaining website
External evaluators (promotes validity of information/data)
Understanding of which information is of most interest to potential
donors
15
Communication/Leadership
Leadership is a person or organization that has:
1.
2.
3.
4.
5.
6.
Enthusiasm
Responsibility
Vision
Integrity
Communication skills
Commitment
Logistics
1.
2.
3.
4.
5.
6.
7.
Strategic plans
Human resources
Definition of means
Public relations
Planning
Organization
Evaluation and follow-up
16
Communication/Leadership
Leadership is demonstrated with:
1.
2.
3.
4.
5.
Vision
Passion
Discipline
Negotiation skills
Teamwork
Design plans
1.
2.
3.
4.
Strategic plan
Operating plan
Financial plan
Train personnel
17
Communication/Leadership
Leadership and communication can be measured through the
following methods:
1.
2.
3.
4.
5.
Quantify and effectiveness of programs and services
The association’s progress towards meeting goals/objectives
Team cohesiveness
Program costs vs. results (i.e., leadership’s ability to manage and work
within available resources)
The image and public persona of the organization
The sharing of information from leadership provides:
1.
2.
3.
4.
Guidance for everyone within the organization
Empowerment to association members
Greater ease in identifying and addressing issues through timely
communication and problem-solving
Ability to approach, evaluate and correct those who have not met assigned
responsibilities or goals
18
Funding Considerations
Funding and support can come in the form of dollars, supplies,
time, logistics, government help and volunteer involvement/
commitment.
Sources for Raising Money:
1.
2.
3.
4.
5.
6.
Some governments provide money for health services
Philanthropist and business donations
Revenue generators (e.g., Costa Rica has an amusement park that raises
proceeds for one of the country’s clinics)
Sponsorship – businesses may sponsor clinics/rooms/beds in exchange for
publicity
Funding from the United States (e.g., regions with large Latin American
populations), Central America (e.g., PAHO) or International Organizations
(e.g., UN, WHO)
Obtain 501(c)(3) statues to become eligible for grants and tax-exempt status;
or, have established 501(c)(3) apply for grants on behalf of the organization
19
Provisional Task Force
A provisional task force was established with representation from each organization attending the
consortium. Over the next eight months, the task force will work to develop strategies and
infrastructure necessary for the association to achieve its goals and objectives. Physicians for Peace will
serve as the primary facilitator of the provisional task force. Team members include:
Organization
Country Represented
Member
Contact Information
Physicians for Peace
United States
TBD
APROQUEN
Nicaragua
Ivette Icaza
[email protected]@com.ni
Fundacion Ruth Paz
Honduras
Samia Jarufe
[email protected]
CRISAQ
Honduras
Ramón Sanchez, JD
[email protected]
Jesus with the Children
Dominican Republic
Xenia Gell de Alvarez
[email protected]
UNYQUEM
Dominican Republic
Dr. Julio Marte Sime
[email protected]
CLINIQUEMI
Guatemala
Dr. Jeane Fuenmayor
[email protected]
Unidad de Quemados
“Pearl F. Ort”
Dominican Republic
Dr. Carlos De los Santos
[email protected]
APROQUEMES
El Salvador
Dr. Manuel Antonio Bonilla
[email protected]
Asociación Pro Ayuda al Nino
Costa Rica
Nayra Gaspar
[email protected]
Children’s Hospital of Panama
Panama
Dr. Marvis Corro
[email protected]
Hospital Naciónal de Ninos
(Burn Unit)
Costa Rica
Dr. Carlos Siri
[email protected]
20
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Central American Consortium for Pediatric Burns